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“ We cannot remain silent during the fight by endometriosis ”

Molly Brewer and Lauren Hirst

BBC News, Manchester

The BBC Roya Rasouli smiles directly from the camera. It stands next to a collection of leggings designed to help those who fight with endometriosis. She wears a light blue blazer and has a ribbon to measure around her neck. Bbc

Roya Rasouli is responsible for helping others

A woman who fought with unmatched endometriosis for 10 years urged her colleagues suffering not to remove their health needs in the workplace.

Fashion designer Roya Rasouli, 27, promised herself on her hospital bed to share her story after finally receiving a diagnosis for the condition in 2019.

She said that she had sworn to express himself in the context of her personal mission to help others, calling for better support for work.

“It seems heartbreaking that women stay to face closed doors,” she said.

Endometriosis is the name given to the state where cells similar to those of the mucosa of the uterus develop in other parts of the body, causing intense pain.

Ms. Rasouli, of Manchester, said that she had been sent from doctor to the doctor for a decade before diagnosing and undergoing surgery.

Roya Rasouli Roya Rasouli is in a hospital bed and wears a white hospital dress after surgery. Roya Rasouli

Ms. Rasouli underwent surgery twice after her diagnosis in 2019

“I had seen around thirty specialized gynecologists and no one has ever discovered what it was,” she said.

“Each person had a different point of view because all my scans and my MRI results were clear.

“At one point, I started to doubt myself and I started to think that it may be just me.

“I just felt extremely extraterrestrial and isolated, all alone and as no one attracts me.”

An area of ​​his life that has been affected is his work.

Ms. Rasouli said that the workplace had not always understood or supported her condition.

“Some people simply do not understand and it is quite difficult when a workplace is not diversified, open and inclusive,” she said.

Ginisha Vekaria, head of the menstrual wellness program for the workplace at Endometriosis UK, said: “About one in six may think about abandoning their work.

“It is not because they cannot do their job, they may simply be bad and miss the work, so again, it comes back to this knowledge and comes back to this support.”

The bill on employment rights is currently evolving by Parliament, which will mean that major employers will have to produce support plans for boresic health.

But in the meantime, Ms. Rasouli hopes that her work will make a certain difference.

Since then, she has created Femwear, a fashion brand aimed at providing comfortable clothing to women with gynecological health and intestinal conditions.

She wanted to share her story to show other women “that it is possible to succeed” despite the challenges of health.

Roya Rasouli, Roya Rasouli stands in front of a screen that includes information on endometriosis. In front of her, there are a number of people who are seated and listing her speech on the Conditon.Roya Rasouli,

Ms. Rasouli wants to promote a feeling of community thanks to her plea for endometriosis

“Since 2019 on the hospital bed, I have sworn that I cannot be silent for 200 million women worldwide,” she said.

“We have to get up and be open and say” it’s ok, life sucks, life is painful “, there is not yet a remedy for that, but we cannot stop living.

“We have to apply for the jobs of our dreams and hang on.

“Endometriosis does not define me and does not define your skills.”

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