Live a normal life with hereditary edema (HAE)

If you are a parent with Hae, it is important to take care of yourself and keep your stress levels remotely. Eating healthy foods, doing daily exercise and sleeping enough is essential for your well-being.

If your child also has hae, you can help him learn to recognize symptoms and take medication regularly. It is also a good idea to create an individualized treatment plan with the doctor of your son or your daughter.

Anyone who takes care of your child should know your emergency plan, in case your child undergoes a Hae attack. You can prepare a concise document that explains this strategy.

HAE children often benefit from a lawyer. Make sure you learn as much as possible on HAE and your child’s options. And educate teachers, coaches and friends on the disease.

More importantly, try to maintain a positive attitude when you discuss your child’s disease. Be optimistic and encourage them to live a full and active life.