Although the right doctors and treatments can help relieve the physical and mental symptoms of Graves’ disease, they are not the only resources you can access. Here are some organizations that can provide education, advice and guidance, allowing you to take control of your symptoms and improve your overall health and well-being.
Graves’ Disease and Thyroid Foundation
The Graves’ Disease and Thyroid Foundation (GDATF) provides education and support to people with Graves’ disease and their family members, friends and caregivers. The organization offers a toll-free helpline that provides one-on-one counseling, and the website lists a doctor registry to connect people with Graves’ disease to specialists.
The GDATF website also has webinars, patient testimonials, newsletters, and links to information on where to find support groups. GDATF also works to help fund research and provide information and other support to healthcare professionals.
American Thyroid Association
The American Thyroid Association (ATA) is a professional organization made up of experts in thyroid disease, including doctors and scientists. The organization helps connect people with endocrinologists and other specialists, provides information about thyroid-related conditions including Graves’ disease and TED, and publishes research on thyroid diseases.
The ATA also publishes a newsletter with updates on thyroid news, summaries of recent studies in medical journals, invitations to upcoming patient events, and more.
American Association of Clinical Endocrinology
The American Association of Clinical Endocrinology (AACE) is a global community of doctors and other professionals specializing in endocrinology, but its website is not just for professionals.
It also offers patient resources, such as an endocrinology care finder and an affordable prescription resource center, where you can find programs that can help you purchase endocrine-related medications. The website also provides links to organizations that conduct clinical trials, including Graves’ disease and other endocrine conditions.
TED Community Organization
The TED Community Organization is a nonprofit advocacy group that includes people with Graves’ eye disease (also known as thyroid eye disease or TED), their loved ones, as well as caregivers, medical professionals, and advocates.
Founded and run by people with TED, the TED Community Organization strives to provide information about the disease as well as emotional and community support. On its website, you’ll find a host of services and programs, including online peer support, educational webinars, and patient podcasts.
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